From Down Under: Stories of MBC
This month we share stories from women with MBC collected by Breast Cancer Network Australia.
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- Breast Cancer Network Australia: Stories of MBC
Life with MBC: 10+ Years and Counting
Researchers are trying to learn why some women and men live for 10 years or more after a diagnosis of metastatic breast cancer. The answers may hold clues for helping more metastatic patients live longer. This month we feature personal stories collected by the Metastatic Breast Cancer Network from some of these long-term survivors.
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- Metastatic Breast Cancer Network: Inspirational stories by those who are living their lives with MBC
Patient and Advocate Perspectives on San Antonio
Hundreds of breast cancer advocates attended the San Antonio Breast Cancer Symposium. Below you can listen to their podcasts and read about how they’ve changed this conference.
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- National Public Radio: How Advocates Have Changed San Antonio
- Breastcancer.org: Heard in the Halls: Voices From the 2018 SABCS
- Breastcancer.org: Heard in the Halls: Voices From the 2018 SABCS-SABCS Through the Eyes of a Person With Metastatic Disease
Stories of De Novo Metastatic Breast Cancer
About 6-10% of breast cancer patients are initially diagnosed at stage IV. This is often called “de novo” – from the beginning metastatic disease. This month we help share the unique experiences of some of these patients.
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- Storm Riders Network: Christine Hodgdon
- Breastcancer.org: Mirryp
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Breastcancer.org: Nicola
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Susan G. Komen: Deborah
More personal stories from MetatastaticTrialTalk.org
MBC Patients in The News
There were a number of websites and news stories in October that focused on the lives and experiences of women and men with metastatic breast cancer.
Personal stories from women and men living with metastatic breast cancer can be found on Breastcancer.org.
Cancer Bell Ringing Angers Some Who Can Only Watch takes a look at a common custom through the lens of metastatic breast cancer.
Raising Their Voices brings you into the activism behind the metastatic breast cancer movement.
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- Breastcancer.org: MBC Patients Sharing Stories
- WebMD: Cancer Bell Ringing Angers Some Who Can Only Watch
- Cancer Today: Raising Their Voices
Living with Triple Negative MBC
Triple negative breast cancer makes up about 15 to 20 percent of all breast cancer diagnoses.This month we feature three stories by women living with metastatic triple negative breast cancer.
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- SHARE Cancer Support: Karen Peterson
- Living Beyond Breast Cancer: Janice Cowden
You can learn more about triple negative breast cancer on these websites:
Triple Negative Breast Cancer Foundation
National Breast Cancer Foundation: Triple Negative Breast Cancer
CDC: Triple Negative Breast Cancer
You can find clinical trials for Triple Negative Breast Cancer on BreastCancerTrials.org. These trials are also listed on Metastatic Trial Search (MTS)
Speaking Out on Inflammatory Breast Cancer
Inflammatory breast cancer (IBC) is a rare, aggressive form of breast cancer. You can learn more about IBC on these websites:
Inflammatory Breast Cancer Research Foundation
Inflammatory Breast Cancer Network Foundation
MD Anderson Inflammatory Breast Cancer Research Program & Clinic
This month we feature three stories by women who were diagnosed with metastatic IBC.
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- Inflammatory Breast Cancer Research Foundation: Anya Silver
- Canadian Breast Cancer Network: Caroline Corriveau
- BreastCancerTrials.org: Trials specifically for inflammatory breast cancer
- Metastatic Trial Search: Trials that Include inflammatory breast cancer
Voices of Men with MBC
The American Cancer Society estimates that this year about 2,550 men will be diagnosed with breast cancer and about 480 men will die from metastatic breast cancer.
This month we link to the stories of men with metastatic breast cancer who are advocating for more research, funding, and support for men and women with metastatic breast cancer.
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- Male Breast Cancer Coalition: Mac Holmes
- Male Breast Cancer Coalition: Kirby Lewis
- Male Breast Cancer Coalition: Bob Holden
- Story Half Told: Michael Kovarik
Metastatic Breast Cancer Advocacy
Katherine O’Brien is a patient advocate for those with metastatic breast cancer. She has been living with MBC for eight years.