What You Need to Know About De Novo MBC Research
Researchers are studying ways to treat de novo MBC, which is breast cancer that is first diagnosed at stage IV. Read about recent de novo MBC research and how to find MBC clinical trials.
St. Gallen International Breast Cancer Conference 2021
Learn about the current research on HR-positive, HER2-Positive, Triple-Negative MBC, and other MBC subtypes from the 2021 St. Gallen International Breast Cancer Conference.
True or False?
2% of breast cancer patients are diagnosed initially with stage IV metastatic disease.
Answer: False
Between 6-10% of breast cancer patients are diagnosed initially with stage IV metastatic disease. This is called “de novo” metastatic breast cancer.
You can learn more about de novo metastatic breast cancer here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5905205/
You can find personal stories from women diagnosed de novo on MTT here: https://breastcancertrialtalk.org/2018/12/01/personal-stories-6/
Should You Get A Second Opinion?
Whether you were diagnosed with MBC de novo or have experienced a metastatic recurrence, a second opinion can help you learn more about your treatment options as well as make you more confident about the treatment plan you choose.
Below you can find articles that can help you think about when and how to get a second opinion. We’ve also included links to NCI-Designated Cancer Centers and NCI Community Oncology Research Programs. Centers included on these lists will offer a range of clinical trials.
-
- American Cancer Society (ACS): Seeking a Second Opinion
- CancerCare®: When to Get a Second Opinion
- Living Beyond Breast Cancer (LBBC): Ask the Expert with William Gradishar, MD: “Second Opinions and Metastatic Breast Cancer”
- National Cancer Institute (NCI):NCI-Designated Cancer Centers
- National Cancer Institute (NCI): NCI Community Oncology Research Program
- Pinnacle Care: When and Where to Get a Virtual Second Opinion
- The Second Opinion: Thesecondopinion.org
- U.S. National Library of Medicine: Your Cancer Diagnosis: Do You Need a Second Opinion?
- U.S. News and World Report: How to Get a Second Opinion From a Doctor at an Academic Medical Center (Scroll Down to the Section Called “Virtual Second Opinions”)
- WebMD:How to Ask for a Second Opinion
Stories of De Novo Metastatic Breast Cancer
About 6-10% of breast cancer patients are initially diagnosed at stage IV. This is often called “de novo” – from the beginning metastatic disease. This month we help share the unique experiences of some of these patients.
-
- Storm Riders Network: Christine Hodgdon
- Breastcancer.org: Mirryp
-
Breastcancer.org: Nicola
-
Susan G. Komen: Deborah
More personal stories from MetatastaticTrialTalk.org