Patient-Reported Outcomes: Including the Patient Voice in MBC Research
Patient-reported outcomes are information reported during a clinical trial by a person with MBC without interpretation by a doctor or anyone else. Having people with MBC directly report their experiences can help researchers better understand the relationship between progression-free survival, overall survival, and quality of life.
Click the links below to learn more about the importance of patient-reported outcomes.
- ASCO: Understanding Patient-Reported Outcomes in Cancer Trials
- Health Catalyst: The Power of Patient-Reported Outcomes
- The Commonwealth Fund: Using Patient-Reported Outcomes to Improve Health Care Quality
- National Institutes of Health Collaboratory: Living Textbook of Pragmatic Clinical Trials: Patient-Reported Outcomes in Clinical Trials
- National Cancer Institute: Collecting Patient-Reported Outcomes is Feasible in Cancer Clinical Trials
- Journal Article: Patient-Reported Outcomes in the Translational Breast Cancer Research Consortium