New Research Presented at San Antonio

bctt on January 2, 2019

The San Antonio Breast Cancer Symposium is a key breast cancer conference that takes place each year. Researchers often use this meeting to report results from large studies that have the potential to change the standard of care for breast cancer treatment.

Below you will find links to some of the findings relevant to women and men living with metastatic breast cancer.

Patient and Advocate Perspectives on San Antonio

bctt on January 2, 2019

Hundreds of breast cancer advocates attended the San Antonio Breast Cancer Symposium. Below you can listen to their podcasts and read about how they’ve changed this conference.

Support for MBC Caregivers

bctt on January 2, 2019

Caregivers play a unique role in the lives of women and men with metastatic breast cancer. In this issue of MTT, we provide tips and resources to help caregivers both provide the support their loved ones need and take care of themselves.

Managing Lymphedema

bctt on January 2, 2019

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Lymphedema–swelling of the arm, hand, breast, or torso–is a side effect that can develop after breast surgery or radiation that can affect the quality of life of individuals living with metastatic breast cancer. Below are websites and organizations that provide lymphedema-related information and support.

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Reporting Side Effects in Cancer Clinical Trials

bctt on December 1, 2018

More attention is now being paid to what types of side effects are reported in cancer clinical trials and how data on these side effects are collected.

Researchers are also expanding the data they collect to include patient-reported outcomes.

The articles below describe studies that have explored ways to collect patient-reported outcomes, why words like “tolerable” and “manageable” may not reflect patients’ actual experiences, the need for studies to collect data on how long side effects last, and ways to streamline reporting of adverse events to the FDA to improve patient safety.

Evidence-Based Information on Herbs and Supplements

bctt on December 1, 2018

Herbs and supplements are widely advertised as beneficial to cancer patients. But how do you know which ones are safe?

Your Tumor and Experience Could Lead to New Treatments

bctt on November 1, 2018

Metastatic breast cancer patients, advocates, and researchers have been working together to develop registries and databases where patients can share information about their tumors as well as their treatments, side effects, and quality of life to help advance metastatic breast cancer research.

MBC Connect is a free, interactive, web and mobile-friendly patient registry. By using the app you help to create a real-time database that can improve our understanding and treatment of metastatic breast cancer. The app is available in English and Spanish.

The MBC Project collects patient data along with blood and tumor samples. Scientists believe studying the DNA in the tumor samples patients provide will help them develop new and better treatments for metastatic breast cancer.

The MBC Project is part of Count Me In, which aims to enroll more than 100,000 patients living with all major cancer types, as well as rare cancers.

You can read more about these program in the Time magazine article below.

MBC Patients in The News

bctt on November 1, 2018

There were a number of websites and news stories in October that focused on the lives and experiences of women and men with metastatic breast cancer.

Personal stories from women and men living with metastatic breast cancer can be found on Breastcancer.org.

Cancer Bell Ringing Angers Some Who Can Only Watch takes a look at a common custom through the lens of metastatic breast cancer.

Raising Their Voices brings you into the activism behind the metastatic breast cancer movement.